This is the latest news about Sue. Today she went back into surgery to remove the sensors that were in her head. She will spend the night in ICU and possibly go home tomorrow. This morning she had some small seizure, and it must have yielded the information her physicians were seeking. I think her marvelous neurologist, Dr. Hogan, is a gem. As was the case last monitoring stay, he was in the room in seconds after the seizure onset. He is so calm and capable and reassuring (not to mention drop-dead handsome), and he must be at the hospital all the time. Today is, after all, Saturday.
Suzanne Hollensbe was with Sue when she went into surgery. Mark Goldman was going later in the afternoon, and of course Chris will be there as he has been every day this week.
I am in Chicago and will return Monday evening. This has been one busy and intense week. Poor Sue has been tethered to her bed, not even allowed to get up and sit in a chair. She has even had someone in the room with her 24 hours a day to make sure NOTHING went wrong with the wires into her head.
The next step is an appointment with Hogan after he has a chance to review all the data. At that time he will tell Sue the next step.
On another front, Dr. Lopate, Sue's neurologist who manages her IVIG treatments, came in. He thinks her wrists and arms are stronger. That is very good news. He had stretched out the IVIG infusions to one every three months but now wants to go back to every other month.
Sue has her computer at the hospital now. I know she will put her own two cents here when she feels up to it.
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