You can reach Sue at (314) 452-3685 or (314) 726-2032. You can write to her c/o Rose Holt, 905 Barnard College Lane, St. Louis, MO 63130


There have already been 47 hits on this blob today so there is a lot of interest in an update. Here it is briefly:

Sue is doing well. I had breakfast with her this morning and she was in good spirits. Den had called her last night from St. Mary's Rehab to report that he too is doing o.k. He had a ton of company yesterday and that cheered him. Today he begins his intensive physical therapy.

Sue and I have contacted our friend Joanne who is the pastoral counselor at St. Mary's where Den is and asked her to check out Den, to give us any feedback she can about his doctors, and to pray--something Joanne is very good at.

Sue has completed three of the five infusions. She will have the last one tomorrow and be finished with it sometime in the afternoon. Tomorrow is a 'black out' day for Southwest Airlines free fliers (which we are), so we must drive and will head south just as soon as she is released from the hospital.

Dr. Costas came in yesterday afternoon and again was extremely informative. He thinks these last two episodes are related to Sue's neurological problem even though the neurologist does not think so. Costas says the odds are just too, too great that she would have two rare disorders simultaneously. However, he like everyone else, doesn't know just what is the problem. He says that this immuno-globulin treatment is effective 65-70% of the time and expects to see improvement in Sue's whole system in two-three weeks.

Our friend Boris from Madison, WI, called to leave a message after he caught up on his blog reading. His message: "Tell Sue that I had been there, I would have looked."

Nancy Felin Hafla called this morning to tell Sue of her and Caitlin's plans to travel to Lourdes. Sue was so touched by the call and Nancy's message that she told me she could hardly talk for crying. Nancy also is a regular blog reader.

Margaret Anne told me that Mary Pauline in Kansas now has an e-mail address plus reams of past entries from this blog and is catching up on family events of the past months. Margaret and I think putting family e-mails here might be of interest to folk. Let us know if you think that is a good idea.