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Friday, May 04, 2007
I spent most of the week at the lake. Maddog and Goldman took me down last Saturday. They had to come back to St. Louis Sunday and then my wonderful neighbors, Dave and Judy, checked in on me frequently. Leslie and Sam {that King boy] arrived Monday morning. Sam had his minnow bucket full and headed for the dock.
Leslie and I spent most of our week visiting {while Sam fished}. Leslie's son, Jeffrey, is on his second tour of duty in Iraq and his second tour recently got extended another three months. Needless to say, Leslie worries constantly about his safety. Keep him in your prayers.
Leslie retired week before last after 30 years at the medical prison in Springfield. Sam has a few years to go yet. He and I were both delivered by Dr. Macdonald from Marshfield. I was delivered by old Dr. Macdonald while Sam was delivered by Tommy, the son. There was, as you can see, a whole generation of difference in time.
Chris came to the Lake on Thursday to get me, and we came home Friday morning. We stopped by his and Shelly's house so he could show me all the work they've been doing on it all winter. I was very impressed.
Scott is coming here tomorrow for a Kentucky Derby party. [Yes, he is coming FROM Louisville to St. Louis for the Derby.] He has been to the betting windows several times this week. Last year I bet on the female jockeys and none won so I didn't bet this year. I asked if he was going to see the Queen and he replied, "I thought YOU were the queen, Mom."
Joe and Pete and some of their buddies joined Donald last week for their annual Florida deep sea fishing trip. Joe said they caught 188 pounds of various fish. He said they hired an 'entreprenur' to clean, dress, and freeze the fish. Was there any tilopia? Sam caught three messes at the lake. I don't think it added up to 188 pounds, but you know how fishermen exaggerate. It could have been.
Margaret is still going to the physical therapist for her back, but says the cure may be worse than the disease. She does say she is some better.
Sandi with 2 LL's will be here for a few days later in May and I'm hoping we can get things finalized for the summer get together. We are all three looking forward to her visit. She seems like a great organizer. We need her.
Tuesday, April 24, 2007
I'm looking for someone to help me out this season at the lake. Driving, grocery shopping, cooking, a bit of housekeeping, and other household chores are mostly what I need help with. This person would have a private room, lots of time off, use of the Seadoo, and a small salary. Another part time job is also a possibility. Goldman will be available when summer school is out on July 13, but I would like to get down there way before then. If anyone knows someone who might be interested, give them my phone number - 314-452-3685.
Margaret is continuing her therapy and steroids for her 'bad back'. She says the physical therapy is quite painful, but she feels better after a while. Her doctor is going to try this treatment for a while before he tries something else.
The three possible resorts at the lake for the family gettogether which are throwing distance from the lake house are the following three among other places which I'll post next week
Aqua Fin, Alhonna, and Lodge of Four Seasons. The Lodge is very expensive. I'll check the phone book when I'm there next week but some of them are probably on line. There are lots of other places, too. I can put up lots of people if they don't mind a lack pf privacy. Joe, have you checked out campgrounds?
Bernie had an anxiety attack right before they returned to Spokane after Maudie's brother-in-law's funeral. Joe thought the anxiety was about being anxious. Maybe it's a family trait. Sometimes I get anxiety attacks about being anxious. He and Maudie called for my birthday and he sounded fine.
Sunday, April 22, 2007
Saturday, April 21, 2007
Mom and Dad didn't sleep a wink the night before they headed out to the funeral and so the help from Uncle Joe - being their taxi and helping them get settled when they arrived in Springfield and then back again on the way home - was a Godsend. I was so blessed to hear that Uncle Joe was there for them - I can't tell you how much that means to all of us. Thanks again for being there for the parents.
Mom said the turnout at all the services was tremendous and there were so many flowers that they couldn't fit them all in the chapel where the funeral was held. They spilled out into the hallways and filled Aunt Viv's house. The family is definitely in our prayers as they say good-bye to Oral and move ahead with life. It has always struck me as how surreal life is that it just goes on when, in fact, it will never be the same again.
While they were there Mom's Aunt Dorothy passed away from Alzheimer's. She was the last surviving relative of our Grandma and one of Mom's favorite people.
This makes our family reunion coming up even more important to us. We are looking forward to the time together. Mom and Dad are already talking of heading out in mid-June stopping first in Portland for their grandson Dan's college graduation and 21st birthday on the 16-17th. Then they will begin their trek to Missouri. I am talking with Cyndi and her family about making the trip and getting in a visit to Six Flags while we are there.
I was in Florida with my son for a family event there - his dad's side - and we visited Busch Gardens. This has whet my appetite for amusement parks and now I've got Kyle and Jake interested...Good times. I have a dear friend who is in Ozark, MO and so I might try to jog down there for a day or two to check in with her.
I'm reminded by the calendar that Aunt Sue's birthday is coming up. (Its Sunday the 23rd, right?) I hope you have a wonderful day with all of your loved ones spoiling you rotten. Cheers!
No other news here except to say that Cyndi and I are inspired by Chris and Shelly's marathon running. While I don't see why anyone would want to do 26 miles at a time, I love a half marathon. 13.5 miles is doable and you don't feel like you will die at the end. I'm a walker though, not a runner, so my hat is off to you two. Cyndi and I have dusted off our sneakers and are determined to get in a few fun runs this year. Making exercise fun is a necessity in my book. Thanks for the inspiration.
Hope this note finds you all well and enjoying the spring. Have a great weekend. More later...
Thursday, April 19, 2007
Pete spends a lot of time advising the young men about questionable pointers about women. One of his first instructions to the men is "Check their teeth". Goldman had a first date with a woman on Monday and he followed Pete's advice - she has good teeth. His problem is that you've never told him what to do next. Pete, he's anxiously awaiting your advice for step 2.
Tuesday night - after my Monday night stay in the hospital - I started having small seizures. I had about 9 of them before daylight. Rose sat with me through the duration. She called the neurologist on duty who prescribed a dose of some medicine I already had on hand. One pill seemed to get them stopped and I haven't had any since. The seizure neurologist thinks an EEG monitor which would require another in the hospital is in order. {I may have the terminalogy wrong, but it's something to pinpoint a possible area of the brain that may be out of whack.} Probably some of you have suspected that of me for years.
I'm currently having physical and occupational therapies two to three times a week. Chris has been a trooper about some of the trips back and forth. Rose takes me too, and they both exercise in Forest Park while I'm having my sessions. The therapy seems to have helped, physically and mentally.
I just talked to Margaret. Her physical therapy isn't until 11. She says she doesn't have a lot of pain until the pain pills begin to wear off. Let's all keep her in our prayers.
Wednesday, April 18, 2007
Margaret is still in lots of pain with her back. She went to the doctor yesterday and he diagnosed a herniated disc. The doctor is going to treat her with therapy and steroids for two weeks. If that doesn't work they will do a nerve conduction test. I think this will pinpoint the exact spot more accurately. I'm not sure where they will go from there if therapy doesn't work.
She says she is really doped up but the dope doesn't completely ease the pain.
I guess Bernie and Maudie went back to Spokane yesterday. They wanted to come up here but Maudie wanted to be with her sister at this sad time.
Goldman and I took the boys halfway to Louisville Saturday morning to return them to their Dad. They were so happy to see him. They like me to tell them stories when we go to bed. One night they wanted to know what I remembered about the first time I saw Aunt Rose. It was "Rosie, you forgot to wash your legs". I thought it happened in the car on the way to Grandpa's and Rose thinks it happened in church. Which was it?
Rose and Shirley made their monthly trip to Chicago last weekend. I stayed with the Hollensbe's. They always make me very welcome and at home. Their two kids, Josie and Luke, were so good and quiet that we hardly knew they were there. Quite a change from Brayden and Jalen who now are into wrestling as in Wrestlemania. We three old ladies hardly knew what they were talking about. They love to wrestle with each other, using phrases "Six-One-Nine, Takedown," and the like.
Chris and Shelly ran in a half marathon (13 PLUS miles!) on Sunday. They both finished and were very sore on Monday. Does everyone remember when Chris didn't even walk fast? For years he brought up the rear. They're going to try a full marathon in the fall.
I went for my 4th IVIG treatment in this latest series on Monday at Barnes hospital. The neurologists measure my strength every time I go in. This time there was a small improvement which gives me some hope. When I had the treatments iniatially in late 2004, the improvement took some time. I try to ride the exercise bicycle every day and use the arm bike, too. I walk where it is feasible. I've been assigned a new occupational and a physical therapist. They are both helpful which also makes me hopeful. Last week Brayden helped me with my new floor exercises and practiced his counting at the same time.
Pete called with his weekly update. It was so dry in Idaho that he has been having to water. It has been so wet here that most of the men I know can't mow. I think some of them are praying for more rain.
Tuesday, April 10, 2007
Margaret is 'down in her back' and is going to have a CT scan this afternoon. She is in a lot of pain and can't seem to find a position to get comfortable in. I spent Easter with them, and all the kids and grandkids were there. They had an Easter egg hunt but had more hiders than hunters. Margaret and I lost my pills in the house on Sunday morning and were convinced we could hunt our own eggs.
Goldman and I went down to the lake on Thursday to see the work the guys did during work week. The remodeled expanded deck is spectacular. It was way too cold to sit outside. In fact, it was freezing cold with a chill factor of 11 degrees. Mike Madden, did it get your grapes? You will probably have lots of volunteer grape stompers when the time comes.
Rose and I are driving half way to Louisville today to pick up Jalen and Brayden. We get to keep them until Friday. Rose and Shirley make quite a team when they play wiffle ball with them. They get to take a shortcut from first to third. This gives the old ladies team a chance to score but it's a long way, even though they are allowed the short cut.
I'm working on the plans for the family get to gether in July. I plan on being at the Lake the month of July but it looks like the biggest gathering will be on the 7th and/or the 8th. I just talked to Bernie and Maudie and they plan on getting here around the end of June. If everyone will tell all the dates to everyone, it would be very helpful. If there are those who anyone thinks needs a snail mailing send us the addresses. Mailing address is 905 Barnard College Lane, St. Louis, MO 63130.
It's Wednesday morning. I got interrupted by our half way trip to Louisville to get the boys. Scott had his car full of stuff that the boys 'had to have' with them. Shirley has to go to Chicago today and hates to miss the time with the boys.
Bernie and Maudie arrived safely in Springfield yesterday afternoon. I've been trying to figure out some way to get down there to see them. Flights are very expensive and schedules are very limited. I talked with Leslie, my old neighbor there, and she was hoping I could come and stay with her. I'm not driving right now because of the small seizures that I was having so can't drive myself. Rose has to go to Chicago on Saturday so she can't come. If I can figure out some way to get down there Joe promised to take me on a tour of Turnbow {or is it Turnbo?}.
Margaret had a MRI, not a CT scan, yesterday. She can't get an appointment with a specialist until the 17th and is in a lot of pain. She says the pain medication doesn't work for very long.
Maudie, we're thinking of you at this sad time.
Thursday, April 05, 2007
These are photos from Brayden's 4th birthday party at our house. He is with Granny, making a wish, and with his friend Goldman.


These are views of the new deck at the lake house. The guys raised the lower level so that now there is one large, continuous deck that is level with the living room.
Wednesday, April 04, 2007
My young men came home from the lake on Sunday. They finished enlarging the deck. I'm eager to see it so Goldman and I plan to go down tomorrow evening. He's off Good Friday.
Pete called this evening. He and Joe are getting ready for their annual fishing trip to Florida. "On the Road Again". Joe went to Branson last weekend to see Willie Nelson, one of my favorites.
Sandi Fellin {2 L's] called this week. I have tentatively planned the family get together for July 2 through the 12th. I'm sure most of you won't be able to stay all that time but I plan to be there and welcome anyone who can come any of the time. I'll put up as many people as I can and will post some motels and prices after I go down tomorrow. It's cold here and we're supposed to have a hard freeze Saturday night. That "King" boy brought me a load of wood this winter and I may have to have a fire in the fireplace.
Randy, Margaret and Norm's son, is just older enough than my two that they swear he 'led them astray' and also some of their friends when they were teenagers. Randy and family have now joined a church and Randy donates much effort to helping the less fortunate. When I talked with him recently about 'leading my boys astray' he said, "And now I can lead them back," - even Goldman because Jesus was a Jew.
Pete's son, Kelly, was 49 yesterday. Leslie, that King boy's wife, was 50 today. Happy Birthday to both of you.
My car got back from North Carolina yesterday. Marge and Norm had a wonderful visit with his relatives. I think his pride and joy, that truck, wasn't yet fixed to his satisfaction. As much as he loves that truck it may never be to his satisfaction.
Jana, Bob's grandaughter, is going to be in charge of telling the Kansas group about the summer gettogether. Jana, I'll call you if you don't read this on the blog. Her daughter, Ellie, just turned one.
Sandi, Tammy, Dick, Bernie and Maudie are the only ones coming for sure from Washington. I hope more of everyone from everywhere can be there at least part if not all the time. Joe, you're in charge of southern Missouri. Send me the email address for the Louisville relatives and others you keep up with. Some Maddens and Lafoes would be a treat to see and reacquaint.
Tuesday, April 03, 2007
Thursday, March 29, 2007
I had a correction comment about Margaret's birthday. It's the 28th so I guess Bob's was the 27th. Rose and I will probably have to relearn next March.
I'm having a bone density scan next Tuesday. No problems but the new primary physician thinks it's time to be checked again.
We have Brayden this week and us three old ladies collapse from exhaustion every night. Rose and Shirley played wiffle ball with him yesterday afternoon. When he got a really good hit he would have to chase it down himself. When they got a hit they had to take shortcuts to get around the bases.
Norm and Margaret are still in North Carolina. I keep cautioning them not to pop any wheelies in my car. Actually, I don't think it will pop wheelies. They're not sure when they'll be back but Norm is ready to come home. He worries about his grass and about starting his garden. Rose's tulips are blooming. The trees are budding. The peonies are starting to grow but won't be in full bloom for a while.
Tuesday, March 27, 2007
On Saturday morning the work began. Doug is the foreman, but is also a very hard worker. Ray arrived with his trailer early Saturday morning. There was much measuring and planning going on after his arrival. After some exchange of opinions and ideas, off they went to Home Depot. Goldman is the 'cabin bitch' and was in charge of breakfast with Chris's help. The guys outside were unloading lumber, tearing out some of the old deck, digging around in the rocks, and other manual chores. The outside workers accused the cooks of frying one slice of bacon at a time. Goldman said "No, they were cutting each slice in half and frying it that way". We had kosher brisket for dinner. Goldman used his grandmother's recipe and she would have been proud of the results.
Work progressed all day. Tired as they were, they had a poker game that night. When they went earlier to get the lumber, they had my credit card. Maddog and Goldman got back much later than the other guys because they were looking for a hooker who would take credit cards. I don't think they found one
Danny's daughter's fourth birthday was Sunday so he had to leave in time to get home for the party. Chris and I left around noon. Ray had to leave Monday. Some are going to try to get back next weekend. In spite of all the work, these guys seem to enjoy it. Scott arrived here in St. Louis and brought Brayden to us on Monday. He says he wouldn't have missed this week if he had had malaria. Derrington and Dane arrived today. We have lots of great neighbors down there, and Jack and Teresa who live next door are making supper for the guys tonight. One year the boys had no heat or water, but I never heard any of them complain.
All the guys call me mom or momma. Some of the newer neighbors down there wonder just how many kids I have. The guys rigged up a video cam so they can show me their progress. They certainly aren't slacking. I'm so eager to see it for real. I'm hoping to get there for Easter weekend.
I can't thank the guys enough for their labor and their wives and girlfriends for the loan of their spouses. I remember their teenage days when I didn't like them, and they didn't like me. Now they are indispensible to me in lots of ways. Whatever I did to deserve their love, help, and attention is one of the best things that I've ever done.
Rose and Shirley have a worhshop all day Saturday. We have Brayden until Sunday, so he and I are going to Suzanne's so Brayden can play with Luke and Josie and I can visit with Suzanne on Saturday. It's a lots like ToyRUs at their house.
HAPPY BIRTHDAY, Margaret. Rose and I can never remember if the date is the 27th or 28th so don't worry about our posting the year. She and Norm are visiting his family in North Carolina.
I still haven't got much respone about the dates for our get together this summer. Get on it.
Thursday, March 22, 2007
Norm had a fender bender Monday in his truck, his pride and joy. He almost had tears in his eyes when he showed it to us. He and Margaret are off to see his North Carolina relatives this morning and were going to take my car instead of their gas hog anyway. The truck will be repaired when they get back so, if there's a good time to have an accident, this was it.
We need some feedback about our family get together. The lake is usually busiest around the 4th of July. Most any time is good with me. I have several beds and air matresses and lots of floor space. Pick a couple dates and we'll decide when will be good for all. Tammy, we haven't answered your question about the timing because nothing has really been decided just yet. Your input would be important to the decision.
I'm going to the Lake tomorrow and staying until Sunday. It's workweek for my young men. They usually spend a week there in the Spring doing some project. Doug is the brains and boss but has lots of gophers. They're updating the deck this year. Last year they had no heat nor water for a while so I hope this year will be better accomodatios for them. They eat, drink, and work.
Friday, March 16, 2007
Pete and Janet got home yesterday. I'm sure the kids and grandkids were happy to see them. Pete keeps the grandsons up to date on women. Like "check their teeth" on the first date and "remember, they're easier to get than to get rid of". Janet, you deserve a medal for putting up with him all these years.
Chris has my car for a couple days. I had cautioned him that I didn't want the dogs riding in it. Iasked him yesterday if they had been riding in it. He replied "Did you say dogS? I said "Yes, I said dogS." He said "No, THEY haven't been riding in it. I take them one at a time because they like to ride in the front seat." He's going to bring the car back when the gas gauge light comes on. Shelly, you probably deserve a medal, too.
Shirley is in Chicago. Rose is going up there tomorrow. I'm going to stay with the Abbotts. They're having their children and grandchildren over for barbeque and to play Trivial Pursuit tomorrow night. I think Margaret and Norm must have those cards memorized.
The neurologists want to try three more of the IVIG infusions. I'll have one next month, one in May, and one in Jung. Along the way, we will reevaluate. Keep praying. The seizures seem to be under control with the current medications. That's a different neurologist who treats the seizure episodes. I have an appointment next week with my primary care physician. I'll see that specialist for my anemia and escalating blood pressure. If hospital personnel didn't take so much blood, I probably wouldn't be anemic and, if they didn't make me so nervous, my blood pressure probably wouldn't be escalating.
Margaret had her checkup with her cardiologist this week and got a good report. {Another kind of specialist} She doesn't have to back for 6 months. She and Norman are planning a trip soon to visit his relatives in North Carolina. They are, of course, watching the price of gasoline closely.
Monday, March 12, 2007
Margaret called me yesterday to check to see if I had had any more "chicken strokes". Joe, would you put in the comment section how it was that I got saddled with the nickname 'Chicken stroker" and also "Pepe la Peu". I've been called these nicknames for over 60 years, thanks to Joe. He named Rose 'Charlie Brown' and Margaret 'Bloomer Leg'. And Joe NEVER forgets.
Bob's favorite story that always made him laugh was when we once went to see Aunt Lois in Great Bend, KS., in perhaps 1978. I hadn't seen Aunt Lois for years, but Bob who lived near Great Bend had. He sent me to the door by myself to see if she would recognize me. She didn't. When I told her who I was, she looked me over good and exclaimed, "Why, you used to be such a pretty little thing." After taking another look she said, "Well, your hair is still pretty." Bob loved to tell this story to anyone who would listen.
We had this homely, fat girl who lived near us in Marshfield. Her name was 'Dorothy May'. We used to tease Donald about her and would call him "DoRnald." He hated this and would tell Mom on us. We would lie and swear we said Donald - not Dornald. Donald, we were really saying "DoRnald."
Margaret was telling me about Rose fighting with 'the Smiley girl' on the way home from school when we still lived on the farm. Margaret says Rose bloodied the little girl's nose. Rose doesn't remember what the fight was about, nor does Margaret. Does anyone else remember? Rose hates this story.
I've been kinda down in the dumps but, after waking up so early and thinking about some of these incidents, I'm much cheered up.
Sunday, March 11, 2007
My young men [some of whom are approaching middle age] are getting their plans and schedules together for their annual work week at the lake house. Sandi -the 2 L Sandi - and I are trying to figure out a time to get as many of all of us together at the lake house as we can. We need suggestions, feedback, convenient times, etc. etc. etc. Help us out here.
I'm going in Barnes-Jewish Hospital on Tuesday for another overnight IVIG treatment. I've been having those small seizures again, and I hope it's just a matter of getting the medication adjusted. The neurologist who specializes in seizures will also see me while I'm in the hospital. I've also been "down in my back" - Isn't that a Marshfield expression? A trip to a chiropractor, back stretches and moist heat have helped there. I'm anemic and have to see a different doctor for that.
Vivian, a longtime friend of Rose's, was over today. She said she reads the blog often but has a very hard time keeping all of us straight. Sabrina asked her husband once if he had seen "My Cousin Vinny". He replied that he didn't even know she had a cousin named Vinny and had never met him.
Big families are wonderful.
Saturday, March 10, 2007

Me, Tammy and Kaye in Olympia a few summers ago!
Denise and I on the beach. Can you see that clear blue water? We did lots of snorkeling with her two fearless boys! 5 year old Nathan and 8 year old Matthieu.
Here's Nathan getting ready to jump in!
I stayed with the family of my good friend Denise, (I found out her nick name is Didi...that was fun!) Denise's father had passed away and the family was gathered there for the funeral. In spite of the sad circumstance we had a marvelous time. Denise is the tenth child out of a brood of fourteen! Makes our family seem small, doesn't it? I fit right in. Her brothers were very fun (much like mine!) and had decided they were on a mission to find me a husband. Unfortuately, my list of qualifications must have been too tough because I came away without any prospects...
Thursday, March 08, 2007
I went back to the neurology clinic at Barnes-Jewish today for a follow up visit with Dr. Lopate. His news was rather disheartening. The two IVIG treatments that I had recently did not achieve the improvement he had hoped for. When I saw him in December, he was leaning toward a diagnosis of motor nerve disease as opposed to a motor neuron disease. Motor nerve disease is autoimmune and is treatable while neuron disease is degenerative. He is very puzzled about my condition, but now thinks it is probably degenerative. He will do four more IVIG treatments in the next few weeks to see if any improvement happens. There isn't any other treatment that he believes will help if the IVIG doesn't. If none of the desired improvement occurs I am going to volunteer for any studies, research, and trial treatments the clinic is doing. Stem cell research shows much promise for conditions like mine and, though it may not be in my lifetime, similar conditions to mine, among many others, are being researched and and trials are being administered in lots of areas. This research gives hope to me and to and to thousands of others.
Meanwhile, I continue to do as much physically as I can. I do my exercises daily and, with love and support from family and friends (especially Rose and Shirley), I maintain as much independence as is possible. The hardest thing I've ever done is NOTHING.
I don't mean for this post to sound hopeless. I promise the next post will be more upbeat and won't just be all about me. Keep praying.
Tuesday, February 27, 2007
Monday, February 26, 2007
Pete called as we were boarding, and he and Janet were in Sedona, AZ. They had been touring all week and enjoying the sights. He hardly believed that I once walked down to the bottom of the Grand Canyon. I did helicopter out or I think I might still be down there.
Shirley's niece, Yvonne, has an impromp theater here in New Orleans. Rose, Shirley, Shirley's sister Loretta, great niece Savannah, and I went to a performance on Saturday night. I was anticipating a long, loud evening. It turned out to be a short-seeming hilarious event. A group of young adults entertained us, and the evening flew by. We went to the early performance and it was nice clean fun. Yvonne said the late show got a bit risque if there were no children there. I imagine that would be even funnier.
Rose and Shirley are going home on Saturday. I had planned to come home then too, but have the opportunity to keep Brayden for a few days so I'm going back early. The Abbotts will give me a hand until Rose and Shirley get back. Goldman and Uncle Ding have offered to help out, too. Jalen asked Scott the other day if it would be OK if he calls Goldman 'Uncle Goldman'.
I have a correction on the last posting. Rose added Joe's update for me but I had thought Joe's cardiologist was a woman. As Kelly Felin used to say "Her's a him".
Friday, February 23, 2007
"She is a he, Dr. David Zolgafhari, MD. It was a very interesting and enjoyable visit. He said he keeps hearing about me from his friends and colleagues. He is the surgeon that did the surgery. Dr. Z also is a member of Hickory Hill Country (per Lisa). My heart Dr. is Dr. Anderson (same office) who is married to the dermatologist Lydia sees. The Heart Dr and dermatologist spouse have two sons who are Mary's past students! One son is now in Lisa's Spanish class and going to Costa Rica this summer with Lisa, Lydia and the rest of the group. Dr. Z said he decided to look at my recent Dr. charts from recent visits (to other Doctors) and then decided to call me in. Everything is real good but he explained the incision hernia in more detail. He visited for probably 15 minutes and mentioned being from Phila, PA and rarely having any contact with any of his patients outside the office (in Phila). He said it is nice to go to Home Depot, etc., and bump into people he knows and know him. I mentioned being stationed in Phila. and the NIKE missile base near his old stomping grounds. It was news to him as guess it was pretty well closed down before he was born.
Moral of the story, I now know what my son went through in high school. Anything he did, even on the ski trip to Colorado, got back to us before he returned."
Tuesday, February 20, 2007
At times the love and caring of a wonderful family and circle of friends keeps me going.
I heard from Pete, Joe, and Bernie, among others this weekend, all calling to check on me and to cheer me up. Bernie and Maudie were in Casa Verde, Az., and looking forward to going back to Spokane. Bernie sounded a bit homesick. Kay-Kay, as we called her when she was a little girl, is going to make the trip with them and then fly back to Mesa. Joe has an appointment with his cardiologist tomorrow to check a small hernia in his incision. He didn't seem to think it was anything to worry about and Norm showed me he has one, too, and it is nothing to worry about, but Joe, keep us updated.
Pete and Janet are going to head for Idaho on the 13th. They're spending one night at Circus-Circus in Las Vegas enroute but Pete says they aren't going to gamble. As Aunt Mit used to say "I've heard bugs poop underwater before". Pete and I agreed that gamblers are like fishermen. It's not that all fishermen are liars. It's just that a lot of liars fish.
Goldman took me to the Abbotts on Saturday. Margaret and I aggravated Norm Saturday night reminiscing about old times. He gets tired of our laughing and arguing about what really happened 50 or 60 years ago. Chris picked me up Sunday and took me home and Shirley and I watched a couple episodes of Desperate Housewives Sunday night.
Jana {Bobby's grandaughter} and John called Sunday night to see if we could watch baby Ellie yesterday. Their daycare had President's Day off and they didn't. They brought her over Sunday night and she slept through the night on a pallet in Shirley's room. She is almost walking and a joy to have. Shirley and I spent the day being entertained by her. She seemed to like Shirley best and then me, but when Dad and Mom got here to pick her up, she would have nothing to do with either of us. Rose is coming back from Chicago today and hated missing our day with Ellie.
My neuromuscular condition hasn't made any notable change for the better or worse since the IVIG's I had last week. I have had a few mini-seizures but I'm still hope the adjusting of the medications will remedy that. The neurologist told me that I've developed anemia but I have to see a different doctor about that. I only weighed 109.5 yesterday morning. Rose and Shirley can't lose weight and, much to their chargrin, I can't seem to gain. They would like to develop just a touch of anorexia.
Again, I hope I don't sound too down in the dumps. Keep praying.
Saturday, February 17, 2007
I didn't intend to sound hopeless in my last blog. There is still no definite diagnosis for my condition. There are some neuropathy cases that defy diagnosis and baffle the experts. I may be one of those. Keep praying. I am surrounded by loving caring people. The list would be too long for this blog. Rose and Shirley, ALL the Abbotts, Chris and Shelly, Scott and family, Goldman, - just to mention a few. My faithful blog readers keep abreast of my ups and downs and trials and tribulations. Shelly thinks Goldman will definitely go to heaven someday even though he IS a Jew.
Everyone helps me whenever I need it. I was talking to Brayden yesterday and told him I was going to come over to Louisville and kick his dad's butt. He said, "Granny, you can't because you are old and have bad hands, but I'll help you and we'll do a wrestling move on him".
Rose's flight is on time so she's scurrying around to get things together. Goldman is coming over to take her to the airport. Chicago is always cold. Sandi, are you basking in the sun while we are shivering in frigid Missouri?
Friday, February 16, 2007
Scott has totaled two cars in the last week. Chris has offered to give him a refresher course in driver's education. He had one of them on the way home from work on the night before the circus. He got a bit banged up in that one but HAD to go to the circus because the boys were so looking forward to it. He's considering buying a four door pickup now. He had a Saturn station wagon vehicle but was incensed when anyone referred to it as a station wagon. He always referred to it as his 'truck'.
Rose took me to Barnes-Jewish hospital for my second IVIG treatment on Wednesday. It was a rather disheartening over night stay. The neurologists were disappointed in my lack of strength gain. The IVIG treatment usually produces a more remarkable improvement than the one that I had last month. I have had IVIG's before, the first one in November, 2004, and periodic ones since. If my improvement has been because of the IVIG's, it has always been gradual. Dr. Lopate is now leaning toward whatever I have being degenerative rather than autoimmune. I go back to see him in a month at which time we will discuss other possible treatments or continuing the IVIG's. Dr. Lopate said other possible treatments carry a greater risk of side effects, including death. Keep praying for me. Jalen was praying one night at supper and he asked God to "help Granny because she needs a lot of help." I do.
Thursday, February 08, 2007
Goldman has been wonderful about taking care of us three old ladies but he nearly blew it on Saturday. He and I stopped at the casino last Saturday after dropping Rose and Shirley at the airport as we were enroute to the Abbotts. I was playing one machine and Goldman was playing one in a different row but kept coming over to make sure I didn't need anything. There was an elderly man at the machine next to me and when he left he told me that my 'husband' could have that machine if he wanted it. When I told Goldman this he got a worried look on his face and exclaimed "I must look really old today". I told him to get his foot out of his mouth because I was sure the man thought I looked really young.
Chris took me to the Barnes-Jewish Seizure Clinic on Monday for the appointment I've waited for for almost two months. [It was the miniseizures that caused me to look for a new neurologist in December, but the Barnes-Jewish neurologist deals only with neuromuscular issues. He, in turn, sent me to this Clinic, after more waiting to get another appointment.] This doctor, a woman, thinks the seizures can be controlled by simply changing my medications. I am a good candidate for this to work since medication worked so well before. She says the seizures are most likely an aftermath of the encephalitis and, like the other neurologists, doesn't think the neuromuscular condition and the seizures are related.
Margaret and I found a phone number for Wanda and called her this weekend. She still lives in Okeechobee but will move to Alabama with a daughter when her place finally sells. Ricky is doing well and was there when we talked to Wanda. The deadly storms in Florida weren't close to her.
Norman still has some pain in his fingers from his snowblowing incident. He has to see the doctor again today. He and Margaret seem to be really enjoying their retirement. They have a daily routine which my presence disrupts, but he takes the disruption well.
Pete, you never did say who sends the check for the refrigerator replacement.
Saturday, February 03, 2007
We had some bad news this week. Shirley's brother-in-law, Clark, died in the middle of the night on Thursday. He had been very ill for quite some time. His widow, Shirley's sister, Loretta, is our vacationing card playing companion. She is our fourth Golden Girl anytime we have the opportunity to be with her. Rose and Shirley are leaving this afternoon for Louisiana to attend the services and to help comfort Loretta and her children. Their son, Michael, lives here in St. Louis and he and his fiance, Leslie, were already in Louisiana. Their daughter, Yvonne, and grandaughter, Savannah, live near Loretta. Shirley is their 'Aunt Rose' and Loretta's 'sister Sue'.
I have the appointment with the seizure clinic on Monday. It took weeks to get the appointment so I don't want to cancel it and decided not to go to Louisiana. Goldman and I will drop Rose and Shirley at the airport this afternoon and then Goldman will take me to the Abbotts. Chris will accompany me on Monday so he can again list my occupation as exotic dancer. The other doctors didn't seem to believe him so he's going to try to convince this new group.
Joe's generator blew out his computer and I guess it's still in the shop since we haven't had any emails from him. He said it's three years old. Pete claims that if you replace a refrigerator every seven years, it will pay for itself. Maybe computers are similar and have a three year economic span. Pete, I replaced my refrigerator at the lake a couple years ago and I'm still waiting for a check. Who's supposed to send it?
I can't tell a lot of improvement from the first two new IVIG's yet, but improvement was slow and very gradual when I had these treatments before. My next infusions will begin Valentine's Day. I'll have to stay overnight in the hospital again which I think is totally unnecessary and makes a long night.
Does anyone keep in touch with Wanda Jean? These awful storms in Florida has made us really think about her and we wonder how she and her family are doing.
Pete just called for his weekly update. He had a birthday this week but didn't do much celebrating since "Ma" had a cold. Bernie and Maudie are nearby and Pete told Bernie that he was an expert at hooking up satellite dishes and volunteered to hook up Bernie's. He had to admit to Bernie after several attempts that he didn't know as much as he thought he did. Is this an inherited trait that we all have, exaggerating our expertise?
The guys are organizing their annual work week at the lake for the last week in March. In reality, Doug tells them how and what to do and has to watch to be sure they do it right. Goldman claims that he can now pull nails out of boards without supervision. Doug, how many years and nails did it take to teach him this? Their project this year is making the deck one level which means fewer steps for me and also so we spread out a bit because we tend to group around just one of the tables. Goldman does most of the cooking during that week except for breakfast. Breakfast is Scott's task and he can never cook too much bacon. Goldman always cooks brisket using his grandmother's recipe at least once and it's always a mover. I don't think they have any sit down organized meals. They eat either when they get hungry or when the food is ready - or both.
Wednesday, January 31, 2007

Saturday, January 27, 2007
Norman was snowblowing his driveway last Sunday and somehow got his fingers caught in the contraption. He didn't make much of the incident at first and was more concerned about a perfectly good pair of gloves. Margaret insisted he go to the emergency room and he had, in fact, cut off the tips of two fingers. The surgeon grafted skin from his wrist to repair the worst finger and sent him home. Norman made Sabrina and Catrina dig the glove out of the trash can when they finally got home late that night. Despite his protestations, the girls threw it away.
We had a newsy email from the newly weds, Anna and Dan. Dan will be transferred to Spokane at the end of March. Anna is still traveling to Florida for her classes and will have to go in February, April, and June. She will have the summer off. Dan will have to stay in Virginia until the end of March to complete a project he is currently involved in. Anna said business at the print shop is steady, which is good.
Rose, Shirley, and I had dinner at Jana and John's last night. Their baby, Ellie, is almost one and a delight. She's about to walk, has 6 teeth, and keeps them both hopping. Jana made a delicious dinner and John always remembers to get my favorite wine.
Pete called this morning. It was 72 degrees there and about half a million people taking advantage of the warmth. Janet is having lots of pain in her back and now in her hip, too. Pain patches help some but not completely.
Bernie and Maudie are wandering around Arizona and must be relishing the weather. Maybe it's an inherited trait because Sandi says Bernie is always cold and so is Rose. Right now she is wearing my vest - one we got after we visited Spokane and saw the FeLLin vests.
Chris and I had lunch Friday with Karen and my stepson Mark. Mark and Karen had big news to announce. They're engaged and have set the wedding date for December 22. Karen already feels like part of the family and, in fact, IS.
Joe was without power for 12 days. The generator he bought blew his computer out so we're behind on news from him. Pete talked to him this morning. Joe was going to Marshfield because he heard there was vandalism at the cemetery.
Goldman continues to be helpful when we need a man around. He is driving Chris's orange Del Sol. We always know when he arrives because of the roar of the little engine in that car.
Thursday, January 25, 2007
Monday, January 22, 2007
Sunday, January 21, 2007
Friday, January 19, 2007
Chris and I are meeting Scott halfway to Louisville this morning to pick up Brayden. We get to keep him until next Tues. or Wed. I doubt that he is as excited as the "Golden Girls".
I had an email from Joe this morning. They are still without power. It went off last Friday and still has not come back on.
Chris is on his way so I've got to get my shoes on. Keep praying.
Tuesday, January 16, 2007
As I was typing the above, the hospital called and I'm to have the first treatment tomorrow. I have to check in the hospital at 8 in the morning. The seizure clinic is a different group of neurologists and they were waiting for the results from the neuromusclar doctors to see me. The nurse who called about admitting will try to have them see me while I'm there anyway.
Goldman pickred me up from the Abbotts yesterday and then we picked Shirley up at the airport. Then Goldman and I joined Sabrina and family and Margaret and Norm for dinner out. It's been very cold here. Goldman has been driving Gossamer, Chris's orange Honda Del Sol. It's a two seater, low to the ground, and loud. We took my car to the airport and dinner and left Gossamer here. When Goldman brought me home and tried to leave in the Del Sol, it's so cold here that he couldn't get the door key in to unlock the car. When he used to leave his old Lexus over here he would leave it unlocked and the key in the ignition. He's acknowledging the advantage of a rusted out, dented old car that will only turn right.
My nose looks worse than it feels now. The stitches should dissolve. Ding hasn't called today yet to see if I'm any prettier. Goldman reminded me what happened to Pinocchio's nose when he lied so I'd best be very truthful because it might hurt worse if it grew.
The ice has melted here and was much worse at the Abbotts. Pete said Joe was without power or cable Saturday morning. We haven't heard from Joe so don't know if he has electricity yet. Bernie and Maudie were somewhere in Arizona yesterday and were headed to Kay's.
Keep praying. I think prayers are working.
Saturday, January 13, 2007
Chris brought bagels for breakfast Friday morning. After he ate, he told me he had to go back to his car. I inquired about what he forgot. He had left his "diary in his purse". The daughter I never had. . . . In reality, he is training for a marathon and had left his running log/journal in his gym bag.
Mike Madden, Uncle Curt's and Aunt Virginia's oldest son, has recently been keeping us updated on his life. His daughter, Lauren, is starting college. Mike lives in Kansas City and is in the process of starting a grape growing project near there. It will eventually be a vinyard and winery. This is an investment for his retirement. If social security funds run out before he reaches that age, he says he will just stay drunk. In case some of us want to join you, are you going white or red?
That was a wonderful update from the FeLLins. By comparison, we are pretty dull. Pete hasn't called yet today. The Abbott clan is way behind on updates. Get busy.
Monday, January 08, 2007
Tim and Roxanne!

Kyle and Jake stayed for the winter installment of Aunt Camp. We (attempted) to go snowboarding on Wednesday, but the mountain was experiencing some extreme weather. We finally drove to the back side of Mt. Hood and found a small resort where they were able to take a lesson and play around. I'm hoping they are hooked. I need more ski buddies. Now, if we can just get Cyndi to like it...
Congrats Anna and Dan!That's all for now. Great to hear how your holidays were filled with fun and family. I hope your New Year is filled with promise and bright days on the horizon. With the dawning of each new day I'm filled with gratitude for the closeness we've enjoyed this last year and look forward to being more a part of each others' lives.
Sunday, January 07, 2007
When he was in high school he once was assigned reading and making a book report on the novel The Old Man and the Sea. He waited until the last minute and was up typing the report on his first computer, an Apple 2E, at eleven o'clock the night before the report was due when an electrical storm came up. The power in the house went off momentarily. When the power came back on, his nearly completed report was gone. Try as he might, he couldn't retrieve his work and had to start all over. What he was telling me was that sometimes things disappear and can't be retrieved.
After he left and was at a poker game with his friends, I called him to tease him that he was right and sometimes things just disappear and can't be found. I couldn't find my blog update but, in the process of searching, I found his Old Man and the Sea report he had lost in eleventh grade. Needless to say, he didn't believe me. If anyone finds my update please post it.
Jana, John, and Ellie got home from Christmas in Kansas. They didn't incur any bad weather with all the storms in some parts of Kansas.
Pete called Saturday morning. Bernie and Maudie had arrived in Arizona Friday tired from their travels. The four of them went to dinner and then to bed early to recuperate.
Rose got some new saws for Christmas and has been busy at carpenter work all day. She is building some more bookshelves in their office in the basement. For those of you who haven't been here, the bathrooms are the only rooms in the house without bookshelves. They may be next.
Friday, January 05, 2007
My last update focused on my health so this one will be about current events. Goldman and Maddog picked me and the boys up for a New Year's Eve party at the Hollensbes'. Doug and Suzanne made a fabulous prime rib/ lobster dinner. The kids preferred chicken nuggets but were almost too busy to stop playing and eat. The Slayton and Cullinane families joined us. Goldman had to go down to the basement occasionally to soothe and referee. Being a schoolteacher makes him very good at this. Rose was under the weather but the doggie bag they sent fed us for two days.
We had to deliver the boys to their dad half way to Louisville on Monday morning, much to our reluctance. We were just into our return to St. Louis when Scott called. He said "Mom, I don't want to upset you, but Brayden just said he misses Aunt Shirley the most cause she's the nicest". Rose and I had worked very hard to show them a good time and Shirley had been in Louisiana since Thursday. Go figure.
Shirley returned from visiting her family in Louisiana on Monday night. Her brother-in-law is still not doing very well but has shown a bit of improvement.
Joe, we may have to get some pointers from you on sailing. Mark, my stepson, has bought a 36 foot sailboat that he's going to keep on Lake Michigan. He and Karen just returned from a week of lessons on sailing in Florida. We've been invited for a sail with them, but I'm not going to get deck shoes until I'm sure they have the hang of it.
I had lunch with Chris and Mark today. We're back to our Friday lunches and are planning another lunch in Evansville, Brick's hometown. We eat at a 'Miss Muzzy" type cafe there with about the same prices that Muzzy charged, so we all grab for the check.
Chris took me to the dermatologist/surgeon about my skin cancer. Joe has had the same thing and so has Chris. The doctor was also a cosmetic surgeon but Chris decided everyone there was on their first trip. He filled out the form for me and listed my occupation as an exotic dancer. I don't think the doctor believed it.
Rose and Shirley are going to Chicago next weekend for their monthly trip. I'm going to stay with the Abbotts and Margaret and I are going to work on plans for reunion this summer. Any suggestions or ideas would be welcome. Joe has already been busy getting things in the planning process.
Our West Coast editors have been slacking off. Fill us in with the happenings.
Wednesday, January 03, 2007
I went to the neuromuscular clinic at Barnes Jewish last Thursday. Rose, one of my many staunch supporters, and I spent the whole day there. I saw about 13 neurologists. At one point there were 5 of them in the room. My neurologist in charge is Glenn Lopate. There is lots of stuff about him on the internet. They drew vials of blood [I thought they were going to have to give me a transfusion when they were done], poked me, shocked me, pinpricked me, tested my strength, watched me walk, hooked me up to various machines, and probably did some other things to me I either forgot or didn't know about. They even watched Rose walk to see if we had an odd "Felin" walk.
After all this they did not come to any diagnosis. Nor has any of the other testing and doctoring I've done for the last 3 years. They may have a diagnosis in about 3 weeks when they get all the results of the tests back. I may have a motor neuron disease which is not treatable. Dr. Lopate said he cannot rule that out but he's leaning toward a possible motor nerve disease which is treatable, and he will be the one that treats it. This is some of the most possibly positive news I've had for 3 years. It's going to be a long 3 weeks.
This group of neurologists deal strictly with muscles and nerves. Since I had encephalitis a couple years ago, I've had intermittent 'spells' for which a different group of neurologists deal with. I'm waiting for a referral from the muscle/nerve group at Barnes Jewish to see that group of doctors.
Meanwhile I had a biopsy on a spot on my nose which turned out to be basil skin cell cancer. I'm having that removed this Friday.
I don't like to dwell on my condition but wanted to let everyone know my current status.
I continue to marvel how good people are to me and would name a lot of them but I type too slowly. The computer would go into one of its modes.


